Morning all, this week has been quite good, Brad's enjoyed having some nice quiet time at home with no problems. Macmillan nurse came yesterday to check Brad's blood and it turns out he's severley neutropenic again despite the Etoposide being excluded, his HB is low, WCC 0.3 and Neutrophils 0.07. His temp was creeping up all through the night and at 6.30 this morning was just below 38deg, we'll try and keep him home today but can't see us keeping him here all weekend if it continues to rise. Will keep you informed of any change.
Mum XXXX

hello its me, ok so far should be able to keep out of hospital this time, big shout out to simon hope it all goes well. to all the boys jack, jamie, jake and sam hope to see u all this week maybe it would be cool if we could get together sometime.

hi to kara new girl at uch, hope it goes well wit ur first round

im a man of few words so see all soon

Hi All, we've settled in ok, in a side room this time, little more space and a better view!!
Brad has had his MRI scan this morning, this was the one to determine the route of his surgery, All is ok for this round, chemo should start running through about 5 this evening once bloods etc have come back.

Thankyou Shelly and Shannon for the diary for Brad, it's very interesting, although some of the tasks for each week are sure to get him in a bit of trouble, or worse - arrested!! Hope you are all ok, speak to you soon.

Mr Whelan has been round this lunchtime and has decided not to use the Etoposide on this round as Brad's tumour is reacting well to the treatment, and to try and reduce the problems Brad is having with neutropenia and infections.

A meeting was held a few days ago with Mr Briggs the ortho at RNOH, they have agreed provisionally to use the Fibula from Brad's left leg to replace the damaged Tibia in his right leg, so unfortunately this means surgery on both legs at the same time!!

We should be home again on Sunday evening, so we'll update again when we get home.
Bye for now
Love Mikki and Brad. :-)

Hi, we got home at 6.30 this evening. Brad's feeling fine, just got fatten him back up again now and get him fit enough to do round 5 on Thursday. He has to continue with a course of antibiotics and have 3 more injections of GCSF as his neutrophils dropped again today, which is most unusual!!!

Bye X X X

Hello everyone, everything is looking good for getting Bradley home for the end of the week, as long as none of us are snowed in that is!!!!

His temp has come right down now and he's had altogether 4 units of blood and some platelets, that should be enough to perk anyone up!!

I think that they would like to see him eating something before he leaves, and he is trying small things a little bit at a time, he'll soon get his appetite back i'm sure. He's back to his usual cheeky and argumentative self, refusing to take the vile medicine for his throat etc, he says it makes him puke!! He promises to take it when it's handed out by the nurse then says ''i'm not taking that S**T''.

I'll let you all know when he's home, although it wont be for long, he's back in again on Thursday for round 5, long enough to watch England again on Saturday - go Johnny!!

Hi all, well Brad just loves going to hospital so much he has decided to pay them another visit - bless him, he's struggled for a couple of days to keep his temperature under control whilst fighting this sort throat again, but on Sunday evening it finally got the better of him. Temperature peaked at 39deg by the time i got him to Addenbrookes in thick thick fog, as usual i.v. antibiotics, replacement fluids and plenty of rest, wcc is 0.01 so he's gone very low again despite the GCSF, hb only 7.5, and neutrophils - well they couldn't find any!!

It'll probably be a couple or three days in again while his counts come up and temperature goes down, so if anyone is up for visiting duties i'll be really grateful as I can only make it to the hospital once a day and i prefer to go in the morning so that i'm there for the doctors rounds.

I'll keep you all posted, but we should have him home again very soon.

Lotsaluv
Mikki